July 1, 2006 (Vol. 26, No. 13)

URL:
http://www.orpha.net/consor/cgi-bin/home.php?Lng=GB

Rating:
Strong Points: Functions well at several levels
Weak Points: None

Summary:
The problem of rare diseases and orphan drugs is an important one. Our profit-driven health care system has its faults, as we all recognize, but these are magnified even more if you suffer from a rare disease or disorder for which drug developers aren’t willing to create drugs due to a limited market. There is probably more information on Orphanet than there is for some of the rare diseases described therein. Information is available that is targeted at medical professionals, patients, support groups, industrialists, and the general public. Articles are well-written and easy-to-understand. What more could one ask of a site?