Current Issue

View Larger Image

Past Issues Free Subscriptions
Sponsored
Keywords



Search Results - Presidential Commission for the Study of Bioethical Issues
 More »

  • Avoiding "Incidental" Damages
    I am not sure I would be here today to speak to you if he had not acted." The Presidential Commission for the Study of Bioethical Issues heard Dr. Hilgenberg, another patient and ...
    5-15-2013
  • Bioethics Panel Urges Caution in Testing MCMs on Children
    The Presidential Commission for the Study of Bioethical Issues concluded that because children enrolled before attacks in "pre-event" MCM trials do not stand to directly benefit ...
    3-19-2013
  • Arrivederci, GINA
    recent developments in addressing the issue of genetic privacy, including publication last fall of a report by the U.S. Presidential Commission for the Study of Bioethical issues. ...
    2-1-2013
  • How Private Is Your Genome?
    The study surfaces just three months after the Presidential Commission for the Study of Bioethical Issues urged that individual interests in privacy must be respected and secured ...
    1-18-2013
  • Biggest Biotech Trends of 2012
    ... Genomic Privacy: Presidential Panel Offers Advice The Presidential Commission for the Study of Bioethical Issues took a small step -not a giant leap-for genomic privacy with ...
    1-15-2013
  • Commission Takes Stab at WGS Policy
    Group Focuses on Data-Sharing and Privacy Concerns Inherent with Whole-Genome Sequencing Jennifer Geetter The Presidential Commission for the Study of Bioethical Issues released a ...
    1-1-2013
  • Biggest Biotech Trends of 2012
    ... Genomic Privacy: Presidential Panel Offers Advice The Presidential Commission for the Study of Bioethical Issues took a small step-not a giant leap-for genomic privacy with ...
    12-26-2012
  • One Small Step, No Giant Leap for Privacy
    Privacy and Progress in Whole-Genome Sequencing report lacks implementation framework. The Presidential Commission for the Study of Bioethical Issues took one small step for ...
    10-17-2012
  • Obama's Bioethics Commission - We Still Need Philosophical Debate
    So, how to begin the discussion? Last month, President Obama established the Presidential Commission for the Study of Bioethical Issues (Executive Order 13521). This replaces the ...
    8-21-2012
  • Scorecard Chides Administration on Synthetic Bio Policy Follow...
    President Barack Obama's administration has not fully addressed any of the recommendations made by its Presidential Commission for the Study of Bioethical Issues a year and a half ...
    7-17-2012
  • Jury Is Still Out Over Disclosing Genomic Research Findings to...
    ... Biobanks' Limitations The consensus paper merits close study by the Presidential Commission for the Study of Bioethical Issues. As part of its study on whole-genome sequencing data ...
    6-19-2012
  • Patient Privacy or Scientific Advances: Do They Have to Be Mutually...
    Three months after examining issues associated with researchers using data from whole-genome sequencing, the Presidential Commission for the Study of Bioethical Issues turned its ...
    6-18-2012
  • Big Promises Backed by Bad Theory
    ... of synthetic organisms into the environment. xvi The U.S. Presidential Commission for the Study of Bioethical Issues stated in its 2010 report on synthetic biology that ...
    5-15-2012
  • Panel Wrestles with WGS Ethics
    Final Recommendations Will Encompass Technology Delivery and Informed Consent The U.S. Presidential Commission for the Study of Bioethical Issues is grappling with many of the ...
    4-1-2012
  • U.K. Groups Grapple with Ethical Issues Linked to Clinical Sequencing
    As a U.S. presidential panel studies the ethical issues associated with whole-genome ... Disorders (DDD) Study, a collaboration ... bioethics commission should give ...
    3-12-2012

GEN Webinars

View »

GEN Web Briefs

View »

GEN Poll

More » Poll Results » Archive »

Genome Sequencing and Patient Autonomy

Do you think ACMG’s recent recommendations for reporting incidental clinical sequencing results undermine patient autonomy?

Suggest a Poll