This list includes disease foundations with research expenses of at least $1 million. [© Dani Simmonds - Fotolia.com]
#10. American Heart Association9
% of Revenue Awarded: 18.3%
Year Ended June 30, 2012, Total Public Support and Other Revenue: $639.525 million
Year Ended June 30, 2012, Research Expense: $128.525 million
- Amount of Research Grants and Awards Awarded: $116.872 million
- % Awarded as Grants: 90.9%
Headquarters: Dallas, TX
#9. The ALS Association
% of Revenues Awarded as Grants: 18.4%
Year Ended January 31, 2012, Total Support and Revenue: $19.043 million
Year Ended January 31, 2012, Research Expense: $3.904 million
- Amount of Research Grants Awarded: $3.500 million
- % Awarded as Grants: 89.6%
Headquarters: Washington, DC
#8. Muscular Dystrophy Association
% of Revenues Awarded as Grants: 21.7%
2011 Total Unrestricted Revenues and Support: $156.589 million
2011 Research Expense: $38.126 million
- Amount of Research Grants Awarded: $33.945 million
- % Awarded as Grants: 89.0%
Headquarters: Tucson, AZ
#7. Leukemia and Lymphoma Society (LLS)10
% of Revenues Awarded as Grants: 22.4%
Year Ended June 30, 2012, Total Revenue: $305.090 million
Year Ended June 30, 2012, Research Expense: $73.512 million
- Amount of Research Grants Awarded: $68.398 million11
- % Awarded as Grants: 93.0%
Headquarters: White Plains, NY
#6. Melanoma Research Alliance Foundation
% of Revenue Awarded as Grants: 24.3%
2011 Total Revenues, Public Support, and Other Income: $21.035 million
2011 Program Services Expense: $6.024 million12
- Amount of Research Grants Awarded: $5.104 million
- % Awarded as Grants: 84.7%
Headquarters: Washington, DC
#5. Parkinson’s Disease Foundation
% of Revenue Awarded as Grants: 46.2%
Year Ended June 30, 2011, Total Revenue and Support: $10.284 million
Year Ended June 30, 2011, Research Expense: $5.671 million
- Amount of Research Grants Awarded: $4.750 million13
- % Awarded as Grants: 83.8%
Headquarters: New York, NY
#4. Alzheimer’s Drug Discovery Foundation14
% of Revenue Awarded as Grants: 52.0%
2011 Total Support and Revenues: $10.614 million
2011 Total Research Expense: $5.762 million
- Amount of Research Grants Awarded: $5.522 million
- % Awarded as Grants: 95.8%
Headquarters: New York, NY
#3. Myelin Repair Foundation
% of Revenue Awarded as Grants: 53.9%
Year Ended June 30, 2012, Total Revenue and Support: $5.328 million
Year Ended June 30, 2012, Research Expense: $4.840 million
- Amount of Research Grants Awarded: $2.873 million
- % Awarded as Grants: 59.4%
Headquarters: Saratoga, CA
#2. Juvenile Diabetes Research Foundation
% of Revenues Awarded as Grants: 57.0%
Year Ended June 30, 2012, Total Revenue: $193.039 million
Year Ended June 30, 2012, Research Expense: $123.928 million
- Amount of Research Grants Awarded: $110.071 million
- % Awarded as Grants: 88.8%
Headquarters: Norwalk, CT
#1. Michael J. Fox Foundation
% of Revenues Awarded as Grants: 82.6%
2011 Total Revenue: $65.183 million
2011 Research Expense: $59.754 million
- Amount of Research Grants Awarded: $53.858 million
- % Awarded as Grants: 90.1%
Headquarters: New York, NY
Notes:
1 Figures include the Arthritis Foundation, its National Office and 13 “Chartered Entities,” consisting of the 10 regional units and three chapters.
2 Figures include the foundation’s National Office and its 51 chapters.
3 Figures include the Society, its National Home Office, Foundation, Cancer Action Network, and Chartered Divisions. http://www.cancer.org/acs/groups/content/documents/document/acspc-037159.pdf
4 Figures include both the headquarters and its affiliates, which numbered 120 last year and 121 in 2011.
5 Figures include the association, the American Diabetes Association Property Title Holding Corp., and the American Diabetes Association Research Foundation, founded to administer the association’s research program, and ensure the availability of funds to support research.
6 Figures include Home Office and chapters.
7 Figures include the foundation and all of its chapters; Cystic Fibrosis Foundation Therapeutics; Cystic Fibrosis Services; Cystic Fibrosis Foundation Pharmacy; and the Cystic Fibrosis Patient Assistance Foundation.
8 Sum of four award and grant programs: $41.074 million for the Therapeutics Development Program, which supports activities related to cystic fibrosis drug discovery through drug development and clinical evaluation; $7.839 million for research grants; $4.024 million for clinical research grants; and $1.770 million for clinical and research fellowship grants. The largest medical program expense, not included in the grants total, is pharmaceuticals at $158.194 million.
9 Figures include the headquarters or “National Center,” affiliates and all components of the association and its division, the American Stroke Association.
10 Figures include the Home Office of LLS and its 56 chapters in the United States, LLSC and its five chapters in Canada, and LLS’s not for profit affiliates, The Leukemia & Lymphoma Society Research Programs, Inc. and The Leukemia & Lymphoma Society Research Foundation. See http://www.lls.org/content/nationalcontent/pdf/2012annualreport.pdf
11 Research consists of $54.527 million in traditional “Awards and Grants” to researchers, as well as $13.871 million spent under the Therapy Acceleration Program (TAP), which funds investigational new drug-enabling studies and clinical-stage projects in an effort to speed the development of blood cancer treatments and supportive diagnostics. TAP entails creating business alliances with biotechnology and pharmaceutical companies.
12 No separate research expenses figure available
13 Includes $3,279,753 in grants to institutions, and $1,470,069 in grants to individuals/programs.
14 Grant award and expense figures furnished by the foundation on its Form 990 for 2011, while total support and revenue figure disclosed in ADDF’s Annual Report 2011.