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June 16, 2014

Top 30 Grant-Giving Disease Foundations: 2014 Edition

Find out which organizations have the biggest hearts (and wallets).

Top 30 Grant-Giving Disease Foundations: 2014 Edition

In the face of cuts from the NIH, these generous organizations have been a big help. [Natalia Merzlyakova - Fotolia.com]

  • Following is a list of 30 nonprofit disease foundations that give grants and other awards (collaborations, fellowships) for research, ranked by the percentage of total revenues spent on those grants and awards. Not included are Section 501(c)(3) exempt private foundations (Bill & Melinda Gates, Clinton) or institutions that care for patients as well as carry out research (Dana-Farber, Mayo Clinic) or research institutes.

    Figures for each disease foundation are based on their audited consolidated financial statements, which combine the results of numerous entities overseen by these institutions, although some information on research expenses and/or awards came from the Form 990s filed by each entity with the IRS.

    As NIH’s budget yo-yo’ed over the past decade, declining some years and staying flat others, numerous observers opined that disease foundations could help pick up the resulting funding slack. Yet over the past year, seven of 20 organizations listed last year by GEN have reduced their spending for research grants and other awards—and of the 10 organizations new to this year’s list, four reduced research spending year over year.

    While the reasons may vary from organization to organization, they suggest that disease foundations alone won’t make up for what the NIH has taken away. Yet the foundations offer valuable help to researchers—not just a shower of cash, but targeted funding programs and perhaps most important, communities with which to share knowledge and collaborate on future studies. Their role in funding research can be expected to grow in coming years.

  • #30. Asthma and Allergy Foundation of America

    % of Revenues Awarded as Grants: 3.7%

    2012 Total Revenue and Support: $3,207,492

    2012 Research Expense: $526,821

    • Research Grants and Assistance: $120,000
    • % of Research Expense Awarded as Grants: 22.8%

    Headquarters: Landover, MD

  • #29. National Parkinson Foundation

    % of Revenues Awarded as Grants: 6.2%

    Year ended June 30, 2013, Total Revenue and Public Support: $9,869,370

    Year ended June 30, 2013, Research Expense: $1,254,976

    • Amount of Research Grants Awarded: $615,814
    • % of Research Expense Awarded as Grants: 49.1%

    Headquarters: Miami, FL

  • #28. Children’s Liver Disease Foundation<sup>1</sup>

    % of Revenues Awarded: 6.6%

    Year Ended March 31, 2013, Total Incoming Resources: $2,784,035 (£1,656,717)

    Year Ended March 31, 2013, Research Grants and Expenditure: $294,713 (£175,377)2

    • Amount of Research Grants Awarded: $184,851 (£110,000)3
    • % of Research Expense Awarded as Grants: 62.7%

    Headquarters: Birmingham, U.K.

  • #27. American Liver Foundation

    % of Revenues Awarded as Grants: 7.0%

    Year ended September 30, 2013, Total Revenues, Gains, Losses, and Other Support: $7,210,089

    Year ended September 30, 2013, Scientific Awards Expense: $505,152

    • Amount of Scientific Awards and Grants: $223,454
    • % of Research Expense Awarded as Grants: 44.2%

    Headquarters: New York, NY

  • #26. March of Dimes Foundation<sup>4</sup>

    % of Revenues Awarded as Grants: 10.8%

    2012 Total Revenue: $209.981 million

    2012 Research and Medical Support Expense: $30.360 million

    • Amount of Research and Medical Support Grants and Awards: $22.613 million
    • % of Research Expense Awarded as Grants: 74.5%

    Headquarters: White Plains, NY

  • #25. Arthritis Foundation<sup>5</sup>

    % of Revenues Awarded as Grants: 10.9%

    2012 Total Revenues, Gains, and Public Support: $94,047,956

    2012 Research Expense: $13,454,241

    • Amount of Research Grants and Awards: $10,204,609
    • % of Research Expense Awarded as Grants: 75.8%

    Headquarters: Atlanta, GA

  • #24. American Cancer Society<sup>6</sup>

    % of Revenues Awarded as Grants: 11.5%

    Year Ended August 31, 2012, Total Revenue, Gains (Loss), and Other Support: $925.390 million

    Year Ended August 31, 2012, Research Expense: $160.139 million

    • Amount of Research Grants for Mission Program Services: $106.882 million
    • % of Research Expense Awarded as Grants: 66.7%

    Headquarters: Atlanta, GA

  • #23. The Susan G. Komen Breast Cancer Foundation, dba Susan G. Komen for the Cure<sup>7</sup>

    % of Revenues Awarded as Grants: 11.6%

    Year ended March 31, 2013, Total Net Public Support and Revenue: $325,202,243

    Year ended March 31, 2013, Research Expense: $49,526,380

    • Amount of Research Awards and Grants: $37,786,227
    • % of Research Expense Awarded as Grants: 76.3%

    Headquarters: Dallas, TX

  • #22. Chordoma Foundation

    % of Revenues Awarded as Grants: 13.4%

    2013 Total Revenue and Support: $1,859,476

    2013 Research Expense: $536,7638

    • Amount of Research Grants and Contracts:  $250,0008
    • % of Research Expense Awarded as Grants: 46.6%

    Headquarters: Durham, NC

  • #21. American Diabetes Association<sup>9</sup>

    % of Revenues Awarded as Grants: 15.1%

    2012 Total Revenues: $228.492 million

    2012 Research Expense: $45.376 million

    • Amount of Research Grants Awarded: $34.540 million
    • % of Research Expense Awarded as Grants: 76.1%

    Headquarters: Alexandria, VA

  • #20. American Parkinson Disease Association

    % of Revenues Awarded as Grants: 16.6%

    Year ended August 31, 2013, Total Revenue: $8,871,339

    Year ended August 31, 2013, Scientific Awards Expense: $1,599,057

    • Amount of Research Grants Awarded: $1,472,147
    • % of Research Expense Awarded as Grants: 92.1%

    Headquarters: Staten Island, NY

  • #18 (tie). National Multiple Sclerosis Society<sup>10</sup>

    % of Revenues Awarded as Grants: 17.7%

    Year ended September 30, 2012, Total Support Revenue and Reclassification: $216,363,554

    Year ended September 30, 2012, Research Expense: $43,255,235

    • Amount of Research and Research Fellowship Grants: $38,348,183
    • % of Research Expense Awarded as Grants: 88.7%

    Headquarters: New York, NY

  • #18 (tie). American Heart Association<sup>11</sup>

    % of Revenues Awarded as Grants: 17.7%

    Year ended June 30, 2013, Total Revenue: $686.538 million

    Year ended June 30, 2013, Research Expense: $133.628 million

    • Amount of Research, Awards, and Grants: $121.647 million
    • % of Research Expense Awarded as Grants: 91.0%

    Headquarters: Dallas, TX

  • #17. PKD Foundation

    % of Revenues Awarded: 18.3%

    Year Ended June 30, 2013, Total Revenues, Gains, and Public Support: $9,247,810

    Year Ended June 30, 2013, Research Expense: $2,219,337

    • Amount of Research Grants Awarded: $1,696,91612
    • % of Research Expense Awarded as Grants: 76.5%

    Headquarters: Kansas City, MO

  • #16. Muscular Dystrophy Association<sup>13</sup>

    % of Revenues Awarded as Grants: 21.8%

    2012 Total Unrestricted Revenues and Support: $159,007,986

    2012 Research Expense: $38,447,07913

    • Amount of Research Grants Awarded: $34,624,93613
    • % of Research Expense Awarded as Grants: 90.1%

    Headquarters: Tucson, AZ

Posted 6/16/2014 by Stan P

The true "insight" that ought to be published about the so-called "disease foundations" is that many are not so much interested in offering "valuable help to researchers" but to support and sustain the profitable medical interventions of mainstream medicine, while ignoring solid scientific medical facts (google/bing "A Mammogram Letter The British Medical Journal Censored"). Many of these "charities" are barely more than well-paid marketing tools of the big business of orthodox medicine, all of it presented to the public as some objective, benevolent enterprise.

 

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